We are working hard to help Joe Wren, a teen with Prune Belly Syndrome find a kidney donor by sharing his story on our social media platforms. e met Joe in Colorado, during the awareness trip. At the time his Kidney was ok. We started helping with the Kidney search on November 2, 2020. His…
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I sat down with AMC Princess Ana, a local AMCer who is a rising star on social media! Check out the video below. -Marty
Check out this article from Metro Times UK about Marty and PSGF! Read the article by visiting https://metro.co.uk/2020/04/09/scissor-man-born-no-hip-joints-defies-warnings-die-without-walking-12517770/
This year’s Prune Belly Syndrome convention was held from July 24th to 28th in Phoenix, Arizona. I was thrilled that Project Scissor Gait Foundation was be one of the sponsors. Convention sessions covered a wide range of topics such as genetics, urology, nephrology, gastroenterology. communication with medical teams and educators plus lots of time to…
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This month I was on the move again! I traveled out to California for part of Misha’s 2nd awareness trip! I met up with them in Los Angeles and San Diego. We had a blast visiting with families impacted by Arthrogryposis, adding more handprints to the car, and even visiting Capitol Records. After hanging with…
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Wow! We are so blown away by the support you all have shown us over the past five years. It makes sense then that our 5th anniversary fundraiser event would be incredible. We raised over $10,000! The event featured speeches by Marty, Retired Detroit Red Wings player Darren McCarty, and Jude, a local teen with Arthrogryposis.…
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Today I had the opportunity to be part of an event held at the Greenville Shriners Hospital in Greenville, SC. The event was organized by Arthrogryposis Multiplex Congenita Support Inc. and Shriners Hospital. I was invited to attend as an adult representative. It was great seeing old and new friends. -Marty
Our last post said that 2019 was going to be an incredible year and we weren’t wrong! I just returned from a month long awareness trip to Peru. I had the amazing opportunity to visit Misha and her husband Mike for awhile in my first international awareness trip. The highlight of the trip was meeting…
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2019 is off to a great start! We are so thankful for the support of the local Ladies Oriental Shriners organization. They held a Murder Mystery themed fundraiser for us earlier this month. Check out a few photos below. We just know this is going to be an incredible year! -The Project Scissor Gait Foundation…
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We’re so excited about the fact that we have new tshirts and hoodies available for purchase! Reach out to us via email or social media for more info. -The PSGF Board of Directors
