On the move again: California and Colorado

On the move again: California and Colorado

This month I was on the move again! I traveled out to California for part of Misha’s 2nd awareness trip! I met up with them in Los Angeles and San Diego. We had a blast visiting with families impacted by Arthrogryposis, adding more handprints to the car, and even visiting Capitol Records.

After hanging with them for a bit I traveled to Colorado to meet with families impacted by Prune Belly Syndrome. While there I met Joe Wren, a teen with Prune Belly Syndrome. He’s doing well right now but may end up needing a kidney transplant at some point in the future. This is common with this condition unfortunately. For now we will celebrate being stable though! Check out some photos from this month’s adventures below.


One Response

  1. I need to to thank you for this fantastic read!! I definitely loved every bit of it. I have got you book-marked to look at new stuff you post…

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