Prune Belly Syndrome Conference in Newark, NJ

This has been one whirlwind of a summer. Last week I got back from my first ever Prune Belly Syndrome convention… It was incredible. I was able to meet others with this condition and just like with AMC, it’s such a great feeling meeting other people who “get it”.  -Marty

Arthrogryposis Conference in Jacksonville, FL

Hey everyone, I just got back from the Arthrogryposis conference in Jacksonville, FL and it was wonderful! I love being able to meet so many new people impacted by AMC… whether they have it themselves or it is a loved one/friend. See below for just a few photos from this incredible weekend. I am also…
Read more

Firebird Tavern fundraiser

Looking for somewhere to go to have drinks with friends this month?  Head over to Firebird Tavern because if you order the special “Charitable Drink” of the week, $2 will be donated back to us! Here’s a quick run-down of the drink offering each week: March 1-7: Basil gimlet – Boodles gin, fresh-squeezed lime juice,…
Read more

D-MAN Foundation holds a fundraiser event benefitting PSGF

We had a great time the other night at the Hard Rock café event benefiting our organization. Scroll down to learn more about the D-MAN Foundation who put on this amazing fundraiser. Who is The D-MAN Foundation? The D-MAN Foundation is a 501 (c)(3) nonprofit organization dedicated to enriching the lives of families and individuals…
Read more

Our first fundraising event

Our first fundraising event was held the other day at the Golden Ark Masonic Lodge in Taylor, MI. Our theme was Viva la fiesta and we raised about $4,000! We are so thankful to everyone that came or contributed to making this event a success! -Marty

New awareness pins are here

We are so thrilled to announce that we now have awareness pins that you can wear and show your support for PSGF.

Are you ready for some football?! Thank you Detroit Lion’s Stephen Tulloch

Detroit Lion #55 Stephen Tulloch donated to the foundation 55 tickets for a Detroit Lions game. We were able to take members of the Michigan/Ohio Arthrogryposis & Prune Belly Communalities to the game because of this generous effort. -Marty

Jackson Shrine Club’s Child Care Night Speaking Engagement

I recently spoke at the Jackson Shrine Club’s Child Care Night through my role as the Imperial Ambassador for Shriners National. The event was covered by the Hillsdale Daily News newspaper! Scroll down to read an excerpt or you can read the full article by clicking here (opens a PDF). Note: the PDF version does…
Read more

Interview with the Oakland Press

I recently had the opportunity to be interviewed for an article about my time volunteering with Shriners that was published by the Oakland Press. Scroll down to read an excerpt or you can read the article by clicking here (opens a PDF). Marty Sheedy wants to pay back the Shriners for the financial assistance the organization gave…
Read more