This year’s Prune Belly Syndrome convention was held from July 24th to 28th in Phoenix, Arizona. I was thrilled that Project Scissor Gait Foundation was be one of the sponsors. Convention sessions covered a wide range of topics such as genetics, urology, nephrology, gastroenterology. communication with medical teams and educators plus lots of time to…
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This month I was on the move again! I traveled out to California for part of Misha’s 2nd awareness trip! I met up with them in Los Angeles and San Diego. We had a blast visiting with families impacted by Arthrogryposis, adding more handprints to the car, and even visiting Capitol Records. After hanging with…
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This past weekend I attended a mini-meetup for families impacted by Prune Belly Syndrome. It was great seeing old and new friends. -Marty
This has been one whirlwind of a summer. Last week I got back from my first ever Prune Belly Syndrome convention… It was incredible. I was able to meet others with this condition and just like with AMC, it’s such a great feeling meeting other people who “get it”. -Marty
