Category: Prune Belly

2019 Prune Belly Conference

This year’s Prune Belly Syndrome convention was held from July 24th to 28th in Phoenix, Arizona. I was thrilled that Project Scissor Gait Foundation was be one of the sponsors. Convention sessions covered a wide range of topics such as genetics, urology, nephrology, gastroenterology. communication with medical teams and educators plus lots of time to…
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On the move again: California and Colorado

This month I was on the move again! I traveled out to California for part of Misha’s 2nd awareness trip! I met up with them in Los Angeles and San Diego. We had a blast visiting with families impacted by Arthrogryposis, adding more handprints to the car, and even visiting Capitol Records. After hanging with…
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Prune Belly Syndrome Mini-Meetup in Columbus, OH

This past weekend I attended a mini-meetup for families impacted by Prune Belly Syndrome. It was great seeing old and new friends. -Marty

Prune Belly Syndrome Conference in Newark, NJ

This has been one whirlwind of a summer. Last week I got back from my first ever Prune Belly Syndrome convention… It was incredible. I was able to meet others with this condition and just like with AMC, it’s such a great feeling meeting other people who “get it”.  -Marty