Prune Belly Syndrome Conference in Newark, NJ

This has been one whirlwind of a summer. Last week I got back from my first ever Prune Belly Syndrome convention… It was incredible. I was able to meet others with this condition and just like with AMC, it’s such a great feeling meeting other people who “get it”.  -Marty

Arthrogryposis Conference in Jacksonville, FL

Hey everyone, I just got back from the Arthrogryposis conference in Jacksonville, FL and it was wonderful! I love being able to meet so many new people impacted by AMC… whether they have it themselves or it is a loved one/friend. See below for just a few photos from this incredible weekend. I am also…
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D-MAN Foundation holds a fundraiser event benefitting PSGF

We had a great time the other night at the Hard Rock cafĂ© event benefiting our organization. Scroll down to learn more about the D-MAN Foundation who put on this amazing fundraiser. Who is The D-MAN Foundation? The D-MAN Foundation is a 501 (c)(3) nonprofit organization dedicated to enriching the lives of families and individuals…
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Are you ready for some football?! Thank you Detroit Lion’s Stephen Tulloch

Detroit Lion #55 Stephen Tulloch donated to the foundation 55 tickets for a Detroit Lions game. We were able to take members of the Michigan/Ohio Arthrogryposis & Prune Belly Communalities to the game because of this generous effort. -Marty