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In June 2018, Project Scissor Gait Foundation and the Dream Walker Project joined forces to travel across the USA to raise awareness for Arthrogryposis Multiplex Congenita (AMC) and Eagle-Barret syndrome (Prune Belly Syndrome).
Traveling by car, they drove across the United States, visiting dozens of cities before arriving at the annual Arthrogryposis Multiplex Congenita Support Inc. conference in Columbus, Ohio on July 4th.
Our mission was simple: we wanted to visit families affected by these rare conditions, bringing them support and hope for the future.
For those who have these rare conditions and those who love them, it’s easy to feel alone… We wanted to let them know that there are people, groups and foundations here to support them in many ways.
As Arthrogryposis awareness month officially comes to an end, I have to give an enormous shout out and praise to Misha who stayed up for so many late hours, worked from the backseat of a car, and did whatever it took to take the audio of the interviews, film each AMCer and turn them into beautiful stories as we traveled from Maine to Houston in 30 days.
I am beyond thankful and grateful that we have crossed paths and now have become family. Her dedication to Arthrogryposis Awareness is a blessing to the world. This is just the beginning of amazing things for the future.
-Marty
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